Little Pancreas, BIG WORLD.
Last night was the season premiere of a TLC program about a family in Oregon that deals with the challenges of being little in a world of average size people. In case you aren’t familiar with Little People, BIG WORLD, it’s an interesting and entertaining documentation of the daily comings and goings of
dwarfs Matt and Amy Roloff, and their son Zach, who, along with three other average height family members, live on a farm near Portland, Oregon.
Now, I’m not a big TV watcher, but I find this program to be very worthwhile because it has made it possible for people of average height to gain a more accurate perspective on the world of people who struggle with obvious disabilities. And it has done it without the ruthless, tear-jerking exploitation of personal tragedy that makes so much of the media downright contemptible.
As the program airs, the overdubbed voices of Matt & Amy can be heard giving viewers a synopsis of their situation. While sitting in front of my in-laws’ television last night, it occurred to me that a lot of their introductory remarks could very well pertain to practically any family of an insulin dependent diabetic. Let’s look at it.
Here’s a transcript of the dialogue between Matt and Amy at the start of each episode of the program. I’ve put some of their words into parentheses, and then used brackets to insert what it might sound like if the issues surrounding dwarfism were replaced by insulin dependent diabetes.
Matt Roloff: “My name is (Matt Roloff) {your name,} and this is my wife, (Amy) {your spouse’s name.}"
Amy Roloff: “We’re (little people) {insulin dependent diabetics.}"
Matt: “When you’re (only four foot tall) {without insulin,} you’re feeling like you’re living in a world that wasn’t made for you.”
Amy: “We have to face obstacles and challenges just to live an ordinary life.”
Matt: “So we’re making our own life (on our 34 acre farm here in Oregon) {in a third floor tenement here in East Undershirt.} As a child, I spent literally years in a hospital bed dreaming about having an ultimate childhood. Now, I get to make those dreams come true for my kids.”
Amy: “Three of our kids (are average height) {make their own insulin,} and only one is (little) {diabetic.} We have twins, but some people don’t believe us, because (Zach) {your diabetic child} is (little) {insulin dependent} like us, and (Jeremy) {your healthy kid} isn’t.”
Matt: “My parents live right down the road. You might be surprised to learn that they’re (average height) {not diabetic.} In fact, Amy’s parents are (average height) {not diabetic,} too. One thing I wish people would understand about (little people) {diabetics} is . . .”
Amy: “. . . we can pretty much do what everyone else does, but just in a different way.”
Matt: “And this is our story.”
There’s no show for people with less obvious disabilities, and there probably never will be. As insulin users, most of us don’t have to worry about standing precariously on a stool to take a boiling pot off the stove, or depending on others to put our carry-on luggage into an overhead compartment, but we still live in a world that was made for “average pancreas” people, and we face special challenges every day that average pancreas people don’t.
How many times in the last 24 hours have you had to face the short term challenges presented by fluctuating blood sugars before getting behind the wheel of your car? Before eating breakfast, lunch, or dinner? Before making an important phone call? Before running into the grocery store to get just a few things on the way home?
How many times in the last week have you thought about exercising more frequently because it’s a virtual prerequisite for people with diabetes? How many times in the last month have you considered the long term effects of an A1c that just won’t drop below 7%?
Pretty much all the time, we are thinking either short term, medium term, or long term with regard to our sugars, constantly trying to come up with effective ways to, as Amy Roloff says, “pretty much do what everyone else does, but just in a different way.”
So until that time when greater numbers of average pancreas people are able to get more than just a few short, inaccurate, news-bite glimpses into “little pancreas, BIG WORLD,” we’ll probably continue (as many of you fellow D-bloggers have written recently) hearing people say things like “I could never give myself shots,” or “If you cut out the carbohydrates, you could stop taking insulin,” or “You're going to go easy on that dessert right?" or even, as in the case of Doug “Mr. Universe” Burns, “You have the right to remain silent.”
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Reader Comments (9)
This was a very interesting way of looking at diabetes. You're right. We deal with being different ALL THE TIME. I like the way you inserted the diabetes stuff into the script so we didn't have to do it. Saved me a lot of time trying to insert the appropriate comments myself. Thanks for bringing this to light in your usual entertaining way!
Thanks Donna. I don't envy the very popular Roloffs their new found privacy issues. I understand that they have had to build a security fence around their property, and also that they had 30,000 people flock to the farm in the fall to buy their pumpkins.
There is still something good to be said for anonymity!
As always, I love your take on (take-off?) of the show. I used to watch the show, because I greatly admire their spirit, but last season, I got a little put off.
Last season Matt was diagnosed with Type 2 diabetes, and while I laughed that he was planning on outsourcing the work of BS monitoring, I got a little sensitive to one of his comments. He told his family (and I'm paraphrasing here) he was type 2, not type 1, THANKFULLY, because that's the bad kind. You don't want type 1.
I just kept thinking, diabetes is just as serious whether type 1 or 2. There is no bad or worse kind, and I'm sad, he expressed that opinion on national TV.
Again, I might just be a tad sensitive.
That is a very interesting comparison, Jeff. I had never thought of the intro to their show in that way before. Last season their was an episode where Matt was dealing with a diagnosis of Type 2 Diabetes himself and was trying to figure out his glucose meter (one of the OneTouch models) and was having a difficult time getting the strips to suck up the blood and I about leapt out of my seat with empathy having experienced the same issue numerous times with my OneTouch strips lol. It's amazing that no matter how different people may be from one another that there is always the opportunity to find common ground and ways to relate to each other.
Mandy & Alison -- Thank you both for enlightening me as to Matt's Type 2 diagnosis last season. As I said, I'm not a big TV watcher, and I was ignorant of this important tidbit.
It will be interesting this season to see if the producers of the show follow through with how diabetes affects Matt and/or the Roloff family. Will he be seen testing his sugar? Will there be any emphasis on a particular diet? Will we learn what meds, if any, he is taking?
The program, in my opinion, has done a lot to educate us average height folks about little people. With Matt's T2 diagnosis, the producers now have a chance to dispel some of the fallacies of diabetes for "average pancreas" people. Let's hope they take it.
Jeff -
Really great post! Informative, creative and well written.
I watch the show from time to time, and always have a new appreciation of my average ( 5'5'3/4) height.
"The whole cut your carb" line is such a sore spot with me, as u well know!
While I'm sorry to hear Matt was diagnosed as a T2, I do hope he will be able to shed some light on the day to day of diabetics, both t1 and t2.
I hope they will address the High Fructose Corn Syrup issue - as far as I'm concerned, HFCS is the #1 reason more and more Americans are being diagnosed with T2.
Kelly K
Thanks, Kelly. I'm glad you liked it. Members of "My TLC" can access the Little People, BIG WORLD bulletin board. I am not a member, but I wonder if the subject of Little People, Big D has come up.
Great post Jeff. I think it would be very interesting to see something like that done with diabetes. Maybe an interesting project for someone over at TuDiabetes.com?
Hi Scott. It would be great to see an unvarnished, extended look into how diabetes affects a family. Any production of this sort would go a long way toward educating the general public about the who, what, where, when, and why of diabetes.